* This is a transcript of the speech given by the General Secretary of the Treatment Action Campaign, Anele Yawa, at the closing ceremony of the 46th Union World Conference on Lung Health.
Delegates, friends, comrades,
I thank you for the opportunity to address you. I am the General Secretary
of the Treatment Action Campaign here in South Africa. We have more than
8,000 members and 182 branches across the country. Our members are
dependent on a struggling public healthcare system. Most of our members ar
the poorest of the poor.
Here in my country more than 80,000 people died of TB last year.
World-wide 1.5 million people died of TB last year. The world is facing a
TB emergency.
Yet, TB remains neglected. Every year we get only a third of the money we
need for TB research in the world. We need $2 billion per year. We only
get $0.7 billion. TB kills 1.5 million people a year, but we can’t
even find $2 billion.
Think about this statistic – 40% of TB deaths are in BRICS
countries. Yet, the BRICS countries contribute only 3.6% of the money for
TB research. In the BRICS our people are dying of TB, but our governments
are not investing in TB research. This is a disgrace.
We say to the government of China . We say to President Xi Jinping.
Your people are dying of TB. Why are you not investing in TB research?
We say to the government of India. We say to Prime Minister Narendra Modi.
Your people are dying of TB. Why are you not investing in TB research?
We say to our government here in South Africa. We say to President Jacob
Zuma. TB is killing your people. Why do you invest less than R100 million
per year on TB research? We can pay for Nkandla. We can pay R4 billion for
a presidential jet, but we can’t find more than R100 million for TB
research?
As we did at our march on Thursday, we demand again that all BRICS
countries and Indonesia triple their investment in TB research over the
next year. We can’t just tinker and settle for incremental change
while our borthers and sisters are dying. We demand a revolution in
funding of TB research.
Friends, comrades. Why does the world not invest in TB? Why is TB not a
priority for heads of state? The answer is very simple. It is because TB
mostly affects poor people. It is because we are poor. This is why the
world can turn its back on us.
Comrades, the lack of investment in TB is a political problem. It is
political, because at its essence it is about governments not being held
accountable for failing to respond to TB. We are not going to change it if
we accept business as usual. We can’t win this battle if we
don’t make it a political battle. And to make it work as a political
battle, we will have to put poor people from affected communities at the
centre of our response. We will have to organise and mobilise. And then be
willing to our hold our governments to account.
This week the Union is talking about a ‘new agenda’. We
appreciate the new agenda. It is a step in the right direction. But the
thing we need most in TB is not a new agenda. We need a new attitude.
We need to ask some tough questions of ourselves and of the Union. Why is
the Union based in Paris? And not in Delhi? Why is next year’s
conference in Liverpool? Why, at a moment where we need to draw more
affected people into our response to the TB crisis, why at such a moment,
take the conference away from where the people are? Why are there no seats
on the Union board allocated to civil society representatives?
Friends, comrades, in the TB world we too often beg for a place at the
table. With that attitude we will never defeat TB. 1.5 million people died
last year. Comrades, when 1.5 million people die then we have a right to
demand. In fact, When 1.5 million people die, we have a moral obligation
to demand. So, we demand that all high-burden countries declare TB a
public health emergency. We demand that these countries implement all the
new tools and policies we have at our disposal to fight TB. We demand that
the BRICS countries triple their funding for TB research.
If governments do not do these things, we must hold them accountable. We
must fight this battle in the boardrooms. We must take it to the streets.
And, if we have to, we must take it to the courts.
I appeal to all of you to join us in this work. 1.5 million deaths is an
emergency. It is time we start acting as if it is an emergency.
It is time not just for a new agenda, but for a new attitude. No more
begging for scraps. From now on we demand.
I thank you.
Source:
Treatment Action Campaign